Calidad de vida en pacientes pediátricos con Fibrosis Quística entre los años 2020-2021 en una IPS de Barranquilla (Atl, CO)
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Fecha
2022
Autores
Zuluaga Giraldo, Yasmin Paola
Alcalá Reniz, Lisseth Paola
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Ediciones Universidad Simón Bolívar
Facultad de Ciencias de la Salud
Facultad de Ciencias de la Salud
Resumen
La fibrosis quística es una entidad patológica que tiene un patrón de herencia autosómica recesiva, según la literatura mundial se dice que en todo el mundo 1 por cada 25 personas es portador sano. En américa latina su incidencia aproximada es de 1 por cada 8500 recién nacidos. En Colombia el subdiagnostico de esta patología es muy importante y se dice que solo el 15% de los pacientes son diagnosticados, esto secundario a los problemas en la infraestructura actual del país. La esperanza y la calidad de vida de estos pacientes ha ido aumentando de manera sustancial en las últimas décadas, pasando de ser una patología con un alto índice de mortalidad en la infancia para convertirse en una enfermedad crónica de la edad adulta.
Objetivo: Evaluar la relación entre la calidad de vida y los aspectos clínicos en pacientes menores de edad con diagnóstico de Fibrosis Quística entre los años 2020-2021 en una IPS de Barranquilla (Atl, CO).
Materiales y Métodos: Fue llevado a cabo un estudio de tipo descriptivo transversal, con el fin de caracterizar y evaluar la calidad de vida de los niños que padecen esta enfermedad en la ciudad de Barranquilla. Se realizó en 27 niños con FQ que consultan a seguimiento con la especialidad de neumología pediátrica y cumplían los criterios de inclusión, se realizó una encuesta de calidad de vida a través del instrumento Cystic Fibrosis QuestionnaireRevised (CFQ-R). Se detalló a través de estadística descriptiva, con medidas de tendencia central y de dispersión, los resultados se mostraron en medidas de porcentaje, media y desviación estándar (SD).
Cystic fibrosis is a pathological entity that has an autosomal recessive inheritance pattern, according to world literature it is said that worldwide 1 in every 25 persons is a healthy carrier. In Latin America its incidence is approximately 1 per 8500 newborns. In Colombia the underdiagnosis of this pathology is very important and it is said that only 15% of the patients are diagnosed, this secondary to the problems in the current infrastructure of the country. The life expectancy and quality of life of these patients has been increasing substantially in recent decades, from being a pathology with a high mortality rate in childhood to become a chronic disease of adulthood. Objective: To evaluate the relationship between quality of life and clinical aspects in minor patients diagnosed with Cystic Fibrosis between the years 2020-2021 in an IPS in Barranquilla (Atl, CO). Materials and methods: A cross-sectional descriptive study was carried out in order to characterize and evaluate the quality of life of children with this disease in the city of Barranquilla. It was carried out in 27 children with CF who consulted for follow-up with the pediatric pneumology specialty and met the inclusion criteria, a quality of life survey was conducted through the Cystic Fibrosis Questionnaire-Revised (CFQ-R) instrument. The survey was detailed through descriptive statistics, with measures of central tendency and dispersion, the results were shown as percentages, mean and standard deviation (SD)
Cystic fibrosis is a pathological entity that has an autosomal recessive inheritance pattern, according to world literature it is said that worldwide 1 in every 25 persons is a healthy carrier. In Latin America its incidence is approximately 1 per 8500 newborns. In Colombia the underdiagnosis of this pathology is very important and it is said that only 15% of the patients are diagnosed, this secondary to the problems in the current infrastructure of the country. The life expectancy and quality of life of these patients has been increasing substantially in recent decades, from being a pathology with a high mortality rate in childhood to become a chronic disease of adulthood. Objective: To evaluate the relationship between quality of life and clinical aspects in minor patients diagnosed with Cystic Fibrosis between the years 2020-2021 in an IPS in Barranquilla (Atl, CO). Materials and methods: A cross-sectional descriptive study was carried out in order to characterize and evaluate the quality of life of children with this disease in the city of Barranquilla. It was carried out in 27 children with CF who consulted for follow-up with the pediatric pneumology specialty and met the inclusion criteria, a quality of life survey was conducted through the Cystic Fibrosis Questionnaire-Revised (CFQ-R) instrument. The survey was detailed through descriptive statistics, with measures of central tendency and dispersion, the results were shown as percentages, mean and standard deviation (SD)
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Palabras clave
Calidad de vida, Fibrosis quística, Niños, Quality of life, Cystic fibrosis, Children
