Cuidados paliativos en la enfermedad de Huntington: perspectivas desde la atención de enfermería
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Fecha
2021
Autores
Navarro, Ana
González, Mileidys
Jiménez, Jennifer
Martínez, Gabriela
Mejía, Cesar
Mendoza, Yulianis
Polo, Francesca
Torre, Geraldine
Turizo, Natali
Mostapha, Ahmad
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Ediciones Universidad Simón Bolívar
Facultad de Ciencias de la Salud
Facultad de Ciencias de la Salud
Resumen
Introducción: La enfermedad de Huntington (EH) es un trastorno neurodegenerativo autosómica dominante, caracterizada por alteraciones motoras, cognitiva y neuro-psiquiátrica, por consiguiente se busca describir los cuidados paliativos de la enfermedad de Huntington desde la perspectiva de enfermería, con el propósito de aportar conocimiento sobre el tratamiento y contribuir a la orientación que puedan ayudar a mejorar la calidad de vida de los pacientes y de sus cuidadores. Conclusiones y recomendaciones: la EH se puede abordar desde diferentes dominios como: dominio funcional, emocional, motor, nutricional y de comportamiento, teniendo en cuenta las necesidades que se presenta en cada dominio se establece las actividades terapéuticas, desde los cuidados paliativos con perspectiva de enfermería, orientado sobre la atención integral activa y continua del paciente-familia donde su finalidad no será como tal la cura de la enfermedad, sino que buscan brindar una mejor calidad de vida para los pacientes y sus familiares.
Introduction: Huntington's disease (HD) is an autosomal dominant neurodegenerative disorder, characterized by motor, cognitive and neuro-psychiatric alterations, at last it seeks to describe the palliative care of Huntington's disease from the nursing perspective, with the purpose of provide knowledge about treatment and contribute to guidance that can help improve the quality of life of patients and their caregivers. Conclusions and recommendations: HE can be approached from different domains such as: functional, emotional, motor, nutritional and behavioral domain, taking into account the needs that are presented in each domain, therapeutic activities are established, from palliative care with a perspective of nursing, oriented on the active and continuous comprehensive care of the patient-family where its purpose will not be as the cure of the disease, but rather they seek to provide a better quality of life for patients and their families.
Introduction: Huntington's disease (HD) is an autosomal dominant neurodegenerative disorder, characterized by motor, cognitive and neuro-psychiatric alterations, at last it seeks to describe the palliative care of Huntington's disease from the nursing perspective, with the purpose of provide knowledge about treatment and contribute to guidance that can help improve the quality of life of patients and their caregivers. Conclusions and recommendations: HE can be approached from different domains such as: functional, emotional, motor, nutritional and behavioral domain, taking into account the needs that are presented in each domain, therapeutic activities are established, from palliative care with a perspective of nursing, oriented on the active and continuous comprehensive care of the patient-family where its purpose will not be as the cure of the disease, but rather they seek to provide a better quality of life for patients and their families.
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Cuidado paliativo, Cuidado de enfermería, Enfermedad Huntington, Dominios alterados, Palliative care, Nursing care, Huntington's disease, Altered domains