Transforming Self-Care: Infotechnological solutions for patients with systemic lupus erythematosus
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Fecha
2025
Autores
Martínez-Royert, Judith Cristina
Castillo Dominguez, Nadine Isabel
Ucros Fuenmayor, Karina Margarita
Aroca-Martinez, Gustavo
Cadena Bofanti, Andrés
Sarmiento Gutierrez, Johani Judith
Vasquez Obeso, Esteban De Jesus
Sierra Cohen, Sheyla Patricia
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Demosthenes Panagiotakos
Resumen
Systemic Lupus Erythematosus (SLE) is a chronic inflammatory and autoimmune
disease of a multisystemic nature that requires lifestyle adaptation by those affected. Therefore, the
importance of providing information and education to individuals with the disease is emphasized,
focusing on self-care to mitigate stress, anxiety linked to uncertainty, and promote engagement in
self-care practices. This need highlights the relevance of having technological methods and tools to
facilitate effective disease management and improve the quality of life. Objective: To design an
infotecnological tool aimed at strengthening the self-care capacities of patients with Systemic Lupus
Erythematosus attending the Clínica de la Costa. Material and Methods: A descriptive quantitative
approach was used, involving 444 lupus patients from the Clínica de la Costa in Barranquilla,
Colombia. The short-term research was conducted in two phases: 1) characterization of the population
in aspects such as age, gender, severity level, comorbidities, and disease knowledge; 2) design and
pilot testing of the infotecnological tool.Results: The average age of the patients was approximately
41 years, with 87.2% (387) being women. The most prevalent comorbidities included hypertension
(18.7%), diabetes mellitus (1.6%), dyslipidemia (1.4%), Cushing's syndrome (2%), osteoporosis (2%), and metabolic syndrome (0.2%). 27% (120 patients) presented active disease, with 18.7% (83)
at a severe level, 5.6% (25) at a moderate level, and only 2.3% (10 patients) presenting a mild severity
level with high knowledge. Conclusions: The majority of patients were female and over the age of
39; most of them had inactive lupus with a high level of knowledge. The technological tool was
validated by the users, who gave it ratings between 4 and 5 and qualitative evaluations ranging from
good to excellent.
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Transforming Self-Care: Infotechnological Solutions For Patients With Systemic Lupus Erythematosus. (2025). The Review of Diabetic Studies , 64-74. https://doi.org/10.1900/ne5nnm02
