Moral structuring of children during the process of obtaining informed consent in clinical and research settings
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Fecha
2020
Autores
Díaz-Pérez, Anderson
Navarro Quiroz, Elkin
Aparicio Marenco, Dilia Esther
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Editor
Springer Nature
Resumen
Background: Informed consent is an important factor in a child’s moral structure from which different types of
doctor–patient relationships arise. Children’s autonomy is currently under discussion in terms of their decent
treatment, beyond what doctors and researchers perceive. To describe the influential practices that exist among
clinicians and researchers toward children with chronic diseases during the process of obtaining informed consent.
Methods: This was a cross-sectional, qualitative study via a subjective and interpretivist approach. The study was
performed by conducting semi-structured interviews of 21 clinicians and researchers. Data analysis was performed
using the SPSS version 21® and Atlas Ti version 7.0® programs.
Results: The deliberative and paternalistic models were influential practices in the physician–patient relationship. In
the deliberative model, the child is expected to have a moral awareness of their care. The paternalistic model
determined that submission was a way of structuring the child because he or she is considered to be a subject of
extreme care.
Conclusions: The differentiated objectification [educational] process recognizes the internal and external elements
of the child. Informed consent proved to be an appropriate means for strengthening moral and structuring the
child.
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Palabras clave
Autonomy, Paternalism, Doctor–patient relationship, Consent, Informed consent in minors, Capacity, Children, Understanding, Moral, Practices, Pediatrics, Clinical, Investigator, Biomedical
